Turnbull/Morrison budget fails to support dementia funding increase.
Kell was diagnosed with younger onset dementia, Fronto Temporal Dementia or Pick’s disease. Now he’s doing all he can to raise awareness about one of the most heartbreaking illnesses in Australia. What a remarkable man.
Disease Overview – Association for Frontotemporal Degeneration
Who Cares for the carers
Governments have yet to create a coherent strategy to help the almost three million Australians providing informal care
If all the hours of informal care provided in that year were replaced with purchased services, the cost would be a stunning $60.3 billion, roughly equal to the 2017–18 cost of all federal assistance for aged care ($64.3 billion) and around 80 per cent of current federal spending on healthcare ($75.2 billion). But there’s every reason to believe that the numbers are even higher.
Many people don’t see themselves as carers; they are simply accepting family responsibilities. And some are caring for several generations of family: ageing parents, a sick or disabled adult child, and grandchildren. Read here http://insidestory.org.au/who-cares-for-the-carers/
Dementia campaign for increased funding15 February 2017 ABC radio
‘A person diagnosed with dementia has no chance’: disease a growing cost for families and society
Miki Perkins http://www.theage.com.au/national/a-person-diagnosed-with-dementia-has-no-chance-disease-a-growing-cost-for-families-and-society-20170214-guclzx.html
Serious and urgent collective action is needed now, to combat or mitigate the impacts of dementia not only within Australia, but globally.
• Tackles the stigma and discrimination associated with dementia and supports social inclusion and participation
• Improves access to timely diagnosis and high-quality health care
• Provides care and support in the community that fosters independence, social engagement and effective support for informal carers
• Ensures access to high-quality residential care and publicly available information about consumer experience and quality of care
• Improves end-of-life care and support for people with dementia
• Commits to increased investment in dementia research.
The National Dementia Strategy would take positive steps
toward a 5% reduction in the number of people with dementia over the age of 65 that could lead to savings of $5.7 billion from 2016-2025, and a staggering $120.4 billion by
2056 and contribute to a global commitment to work toward a World without dementia.
Professor Graeme Samuel AC President Alzheiemer’s Australia
Report Prepared for Alzheimer’s Australia by Professor Laurie Brown,
Erick Hansnata and Hai Anh La
NATSEM at the Institute for Governance and Policy Analysis,
University of Canberra
Excerpt from the Research Report
Impact of Reduced Incidence of Dementia on Costs
The lifestyle risk and protective factors for dementia offer very real opportunities for prevention programs that reduce the number of Australians developing dementia each year.
In this scenario, it is assumed that the annual age-sex incidence rates of dementia are reduced by 5% in people aged 65 years and above.
• This reduction in the incidence of dementia would lead to a 13% reduction in the number of persons with dementia in the population by 2036 and a 24% reduction by 2056
i.e. there would be 98,529 fewer people with dementia in 2036 and almost 261,000 fewer people by 2056 compared with the current projections of the prevalence of dementia over the next 40 years.
• Such an intervention would result in a total savings of $26.8 billion in the costs of dementia over the next twenty years (comprising savings in direct costs of $17.6 billion
and indirect costs of $7.2 billion) and a massive $120.4 billion by 2056
(savings in direct costs of $76.6 billion and
Indirect costs of $43.8 billion).
Earlier the LNP government cuts dementia funding.
Minister cuts $110m dementia supplement
By Linda Belardi on June 27, 2014
The Federal Government’s decision to axe the Dementia and Severe Behaviours Supplement following a ten-fold blow out in expenditure has drawn sharp criticism from industry and consumer lobbies.
Assistant Minister for Social Services Mitch Fifield announced on Thursday the government would stop paying the $16 per day supplement to providers from 31 July. Mr Fifield said there was no other responsible course of action in the circumstances and he did not commit to a replacement scheme.
Aged and Community Services Australia CEO John Kelly said the supplement’s scrapping was a knee-jerk reaction that would jeopardise services.
Alzheimer’s Australia CEO Glenn Rees said that people with dementia were being made to pay the price for the poor handling of the supplement.
Orange to lose its only dementia support officer as funding dries up ABC Central West By Joanna Woodbury 8 Dec 2016 Funding for Orange’s only dementia support officer is being cut, leaving the district without any dedicated carer from 2017.
The position is paid for by the NSW Health Department and Alzheimer’s Australia, which receives money from the Commonwealth.
Constant reports of breakthroughs
My Dementia Reading
For the specific form of dementia FTD Fronto Temporal Dementia or Pick’s disease, you can google the details, for medical research google that. One example:http://www.bluefieldproject.org/ftd
The study from Lund University in Sweden suggests that one-third of patients with the diagnosis Alzheimer’s disease or frontotemporal dementia were physically aggressive towards health care staff, other patients, relatives, animals, and complete strangers.
The Alzheimer’s’ Prevention Program Keep Your Brain Healthy for the Rest of Your Life by Gary Small and Gigi Vorgan
“Want to keep Alzheimer’s at bay for years—ideally, forever? Prevention is the way, and this is the guide. The Alzheimer’s Prevention Program is essential for everyone with a family history of Alzheimer’s, and for the 80 million baby boomers who worry whenever they forget someone’s name. It’s the book that shows how to strengthen memory and avoid everyday lapses.
How to incorporate the top ten brain-protecting foods into your diet. (I find that for years I have been eating a good brain diet).
How to cross-train your brain, exercising both the right and left hemisphere. (I have been painting – colour for over 20 years).
And how to reduce stress, a risk factor for developing dementia and Alzheimer’s, through meditation (that I have done for years as well as Tai Chi) and 11 other relaxation strategies.
Written by the New York Times bestselling authors of The Memory Bible, this book is an easy-to-follow regimen based on the latest comprehensive research into Alzheimer’s disease, and especially the critical connection between lifestyle and susceptibility. Answers the most compelling questions asked of Dr. Small including: the power of exercise to offset a genetic predisposition; antibodies that can clear Alzheimer’s plaques from the brain; and promising new treatments, from drugs to deep brain stimulation.’ Advert
Here is a listing of what you can do to be brain healthy. Indeed you may well follow as I have the brain boosting diet, alternative therapies, supplements, meditation, yoga, tai chi exercise, lowering alcohol. Unfortunately this does not prevent FTD Frontal Temporal Dementia.
Extra Virgin Olive Oil helps https://professorhealth.org/2017/12/extra-virgin-olive-oil-could-protect-the-brain-from-alzheimers-disease/
Blueberry vinegar http://www.dailymail.co.uk/health/article-5205287/This-ONE-salad-dressing-help-fight-dementia.html?ITO=applenews
Look after your heart https://healthminute.org/2017/12/to-lower-your-dementia-risk-later-in-life-protect-your-heart-in-middle-age/
The Tell-Tale Brain: Unlocking the Mystery of Human Nature
by V. S. Ramachandran
Review here http://www.tandfonline.com/doi/abs/10.1080/13546805.2012.685295?src=recsys&journalCode=pcnp20
Boost Your Brain The new art and science behind enhanced brain performance by Majid Fotuhi 2013 HarperOne
Everything we think, do, and refrain from doing is determined by our brain. It shapes our potential, our limitations, and our characters. In other words, we don’t just have brains; we are our brains.
This forceful conclusion is at the heart of pre-eminent brain researcher DF Swaab’s international bestseller. It reveals how nearly everything about us – from our sexual orientation to our religious proclivities – is present in our neuronal circuits before we are even born. In short, engaging chapters that combine fascinating and often bizarre case studies and historical examples, Swaab explains what is going on in our brains at every stage of life, from the womb to the radical changes that take place during adolescence to what happens when we fall in love or get Alzheimer’s. Provocative, opinionated and utterly convincing, We Are Our Brains illuminates this complex organ’s role in shaping every aspect of human existence.
Christine Bryden’s story
Christine has written four books about Alzheimers and Dementia. The title of her first book, Who will I be when I die expresses the fear she had about dementia which is supposed to rob you of your identity and personality. Even in the early days, a diagnosis of dementia can result in social exclusion, making the person’s struggle so much worse, as they try to cope with the trauma of their fear of the future, as well as grief at ongoing loss. The stigma that results from the stereotype of the later stages of dementia means that people don’t know how to relate to someone with dementia, so the person becomes isolated with their fears.
Christine is passionate about overcoming stigma, and creating a dementia-friendly society, in which people with dementia are given hope and encouragement, and are supported and included. She wants to see an end to the discrimination against people with dementia, to see compassionate care of people with dementia at all stages, and to see real efforts being made to find cures for the more than one hundred diseases that cause dementia.
Christine Bryden was a top civil servant and single mother of three children when she was diagnosed with dementia at the age of 46. ‘Dancing with Dementia’ is a vivid account of her experiences of living with dementia, exploring the effects of memory problems, loss of independence, difficulties in communication and the exhaustion of coping with simple tasks. It continues the story of her journey since diagnosis with dementia, meeting her husband Paul and embarking on a journey of advocacy for all those living with Alzheimer’s Disease or other forms of dementia. She describes how, with the support of her husband Paul, she continues to lead an active life despite her dementia and explains how professionals and carers can help. The book is a thoughtful exploration of how dementia challenges our ideas of personal identity and of the process of self-discovery it can bring about. It has been translated into several languages.
Dancing with Dementia, Christine Bryden, Jessica Kingsley Publishers, London,2005.
‘Still Alice’ by Lisa Genova. A well-written novel, an American account, a tear-jerking journey – now a major film and cd available
The film Still Alice features Julianne Moore named Best Actress for a Motion Picture in the drama category at the Golden Globes for her depiction a 50-year-old Columbia University professor, gifted lecturer and researcher, wife and mother of three grown up children, who is living with younger onset dementia.
Based on the book by Lisa Genova, if you would like see Still Alice trailer.
Criticism of film Still Alice
A new study suggests that a simple eye exam and retinal imaging test may help improve the diagnostic accuracy of frontotemporal degeneration (FTD), a disease which causes progressive damage to the temporal and/or frontal lobes of the brain.https://psychcentral.com/news/2017/09/11/simple-eye-exam-may-improve-diagnosis-of-frontotemporal-dementia/125789.html
Two books by Professor Steven Rose
21st Century Brain
‘The human brain is the most complex structure in the known universe. Learning how it works, the relationship between mind and brain, is one of the most fundamental and important of scientific questions and neurobiology one of the fastest growing research areas. New tools, from molecular genetics to the windows into the brain offered by imaging techniques, have transformed our understanding.
Brain researchers now claim to be able to explain the roots of human personality and behaviour, of language and even of consciousness itself. Coupled with claims of new knowledge come potential new powers, to cure devastating diseases like Alzheimer’s, to control behaviour through tailor-made drugs, to develop human-machine hybrids – cyborgs. But just how far have the neurosciences come in their claims to be able to understand mind and brain? How seriously should we take these new developments.’
The Future of the Brain
‘Brain repair, smart pills, mind-reading machines–modern neuroscience promises to deliver a remarkable array of wonders as well as profound insight into the nature of the brain. But these exciting new breakthroughs, warns Steven Rose, will also raise troubling questions about what it means to be human. In this book, Rose explores just how far neuroscience may help us understand the human brain–including consciousness–and to what extent cutting edge technologies should have the power to mend or manipulate the mind. He illuminates the potential threats and promises of new technologies and their ethical, legal, and social implications.’
Steven Rose 2009
“In Search of my Father” by Dr Helena Popovitc https://www.drhelenapopovic.com
Dementia is no match for a daughter’s determination 2012
Two books by Norman Dodge The Brain’s Way of Healing Remarkable Discoveries
‘Norman Doidge described the most important breakthrough in our understanding of the brain in four hundred years: the discovery that the brain can change its own structure and function in response to mental experience—what we call neuroplasticity.
His revolutionary new book shows, for the first time, how the amazing process of neuroplastic healing really works.’
The Brain That Changes Itself
THE BRAIN CAN CHANGE ITSELF. It is a plastic, living organ that can actually change its own structure and function, even into old age. Arguably the most important breakthrough in neuroscience since scientists first sketched out the brain’s basic anatomy, this revolutionary discovery, called neuroplasticity, promises to overthrow the centuries-old notion that the brain is fixed and unchanging. The brain is not, as was thought, like a machine, or “hardwired” like a computer. Neuroplasticity not only gives hope to those with mental limitations, or what was thought to be incurable brain damage, but expands our understanding of the healthy brain and the resilience of human nature.
Norman Doidge, MD, a psychiatrist and researcher, set out to investigate neuroplasticity and met both the brilliant scientists championing it and the people whose lives they’ve transformed. The result is this book, a riveting collection of case histories detailing the astonishing progress of people whose conditions had long been dismissed as hopeless. We see a woman born with half a brain that rewired itself to work as a whole, a woman labeled retarded who cured her deficits with brain exercises and now cures those of others, blind people learning to see, learning disorders cured, IQs raised, aging brains rejuvenated, painful phantom limbs erased, stroke patients recovering their faculties, children with cerebral palsy learning to move more gracefully, entrenched depression and anxiety disappearing, and lifelong character traits altered. Doidge takes us into terrain that might seem fantastic.
We learn that our thoughts can switch our genes on and off, altering our brain anatomy. Scientists have developed machines that can follow these physical changes in order to read people’s thoughts, allowing the paralyzed to control computers and electronics just by thinking. We learn how people of average intelligence can, with brain exercises, improve their cognition and perception in order to become savant calculators, develop muscle strength, or learn to play a musical instrument, simply by imagining doing so. Using personal stories from the heart of this neuroplasticity revolution, Dr. Doidge explores the profound implications of the changing brain for understanding the mysteries of love, sexual attraction, taste, culture and education in an immensely moving, inspiring book that will permanently alter the way we look at human possibility and human nature.
Intellectual development is critical. Intermittent fasting also helps keep you sharp.
Moonwalking with Einstein by Joshua Foer
The Art and Science of remembering Everything
“Foer’s unlikely journey from chronically forgetful science journalist to U.S. Memory Champion frames a revelatory exploration of the vast, hidden impact of memory on every aspect of our lives.
On average, people squander forty days annually compensating for things they’ve forgotten. Joshua Foer used to be one of those people. But after a year of memory training, he found himself in the finals of the U.S. Memory Championship. Even more important, Foer found a vital truth we too often forget: In every way that matters, we are the sum of our memories.
Moonwalking with Einstein draws on cutting-edge research, a surprising cultural history of memory, and venerable tricks of the mentalist’s trade to transform our understanding of human remembering. Under the tutelage of top “mental athletes,” he learns ancient techniques once employed by Cicero to memorize his speeches and by Medieval scholars to memorize entire books. Using methods that have been largely forgotten, Foer discovers that we can all dramatically improve our memories.
Immersing himself obsessively in a quirky subculture of competitive memorizers, Foer learns to apply techniques that call on imagination as much as determination–showing that memorization can be anything but rote. From the PAO system, which converts numbers into lurid images, to the memory palace, in which memories are stored in the rooms of imaginary structures, Foer’s experience shows that the World Memory Championships are less a test of memory than of perseverance and creativity.
Foer takes his inquiry well beyond the arena of mental athletes-across the country and deep into his own mind. In San Diego, he meets an affable old man with one of the most severe case of amnesia on record, where he learns that memory is at once more elusive and more reliable than we might think. In Salt Lake City, he swaps secrets with a savant who claims to have memorized more than nine thousand books. At a high school in the South Bronx, he finds a history teacher using twenty- five-hundred-year-old memory techniques to give his students an edge in the state Regents exam.
At a time when electronic devices have all but rendered our individual memories obsolete, Foer’s bid to resurrect the forgotten art of remembering becomes an urgent quest. Moonwalking with Einstein brings Joshua Foer to the apex of the U.S. Memory Championship and readers to a profound appreciation of a gift we all possess but that too often slips our minds.”
The Brain Supremacy Notes from the frontiers of neuroscience by Kathleen Taylor Oxford 2012
How Dementia affects the Brain and the Person DVD.
Administration Officer – Hospitality | Alzheimer’s Australia Vic
155 Oak Street Parkville VIC 3052 p: +61 2 9815 7800 | f: +61 3 9816 5733 | e: Emma.OBrien@alzheimers.org.au
www.fightdementia.org.au/vic< What are some nonmedical interventions to comfort Alzheimer's patients? Do not argue with or correct the person with dementia. No matter how strange, how far off base, how whacked out their statements are, do not argue or correct them. It absolutely doesn’t work in most cases, and can cause an escalating anxiety as you challenge the reality they are experiencing.
Time Love Memory A great biologist and his journey from genes to behavior by Jonathon Weiner Single Enzyme Gains the Upper Hand in Two Types of Dementia
By Gary C. Howard, PhD / Gladstone News / January 12, 2017
Researchers in the laboratory of Steven Finkbeiner, PhD, discovered a single enzyme that regulates progranulin, a protein that may contribute to Alzheimer’s disease and frontotemporal dementia.
Scientists at the Gladstone Institutes scored a rare two-for-one gain by discovering an enzyme that controls the levels of a protein implicated in both Alzheimer’s disease and frontotemporal dementia.
“For some time, we have known that low levels of the protein progranulin are associated with these two forms of dementia and that increasing levels improves deficit in animal models of the two diseases,” said Steven Finkbeiner, MD, PhD, a senior investigator at Gladstone. “But how could we use that as a possible therapy? That’s what is exciting about our latest results.”
In a new study published in the Journal of Biological Chemistry, Finkbeiner’s team looked closely at progranulin, which is secreted from cells and controls inflammation. Having only one copy of the gene for progranulin causes frontotemporal dementia, the most common form of dementia in people under age 65, while having mutations in the progranulin gene is a risk factor for developing Alzheimer’s disease. Both conditions result in lower levels of progranulin in the brain.
Many popular cures are in demand. Many giant corporations and our 1% rich make huge profits with many products for dementia but apart from in some people having an improved life with dementia no real cure.
Every week I see new reports. Don’t get me wrong more research is essential.
Within the dementia community, hope is high for a cure for Alzheimer’s. One example is from the Time Magazine. In Time February 6th 2017 linking good health to aiding Alzheimers and with summary of public information on the health of the heart. Ref higher education is good; Drugs and lifestyle factors the key.
Here’s What Happens to Your Brain When You Die
You might picture yourself walking through a field, or surrounded by loved ones. Or perhaps making your way down a long, dark tunnel, towards a brilliant, beckoning light. When the end comes, what you experience will be a veiled secret known only to you – but whatever it is, scientists say those closing moments of consciousness could be powered by something amazing and mysterious taking place inside your brain.
One key factor is long-term smoking increasing the risk and prevalence of dementia.
New Alzheimer’s treatment fully restores memory function.http://www.sciencealert.com/new-alzheimer-s-treatment-fully-restores-memory-function
Of the mice that received the treatment, 75 percent got their memory function back 18 MAR 2015
Australian researchers have come up with a non-invasive ultrasound technology that clears the brain of neurotoxic amyloid plaques – structures that are responsible for memory loss and a decline in cognitive function in Alzheimer’s patients.
‘Souvenaid’ Research and anecdotal evidence this slows down the impact of Alzheimer’s. But not for all dementia, not for FTD.
Medicinal cannabis does not kill brain
Paintings and dementia
Psychologists believe they can identify progressive changes in work of artists who went on to develop Alzheimer’s disease
Ian Sample Science editor 29 December 2016
The first subtle hints of cognitive decline may reveal themselves in an artist’s brush strokes many years before dementia is diagnosed, researchers believe.
The controversial claim is made by psychologists who studied renowned artists, from the founder of French impressionism, Claude Monet, to the abstract expressionist Willem de Kooning.
While Monet aged without obvious mental decline, de Kooning was diagnosed with Alzheimer’s disease more than a decade before his death in 1997.
Strobe lighting provides a flicker of hope in the fight against Alzheimer’s.
Alex Forsythe at the University of Liverpool analysed more than 2,000 paintings from seven famous artists and found what she believes are progressive changes in the works of those who had cognitive decline.
“To me, the most inspiring message to come out of this work is that beautiful artworks can result from pathological conditions,” he said. When de Kooning was diagnosed with Alzheimer’s, some critics argued that he should stop painting, but as he slipped into dementia, his artwork changed and became more simple, Taylor said.
“To me, these more simple works conveyed a peacefulness that wasn’t present in his nurture-dominated earlier work. It all goes to show that sometimes you can think too much about art. Sometimes you just need to tune into your inner self, the ‘nature’ part,” he said.
ABC Catalyst on Dementia
Children tell dementia storieshttp://www.smh.com.au/national/children-tell-real-life-stories-of-dementia-20150923-gjsz47.html
Children of patients with C9orf72 mutations are at a greater risk of frontotemporal dementia or ALS at a younger age
What are the stages of frontotemporal dementia?
Frontal temporal dementia support
http://www.theaftd.org.auHow long FTD, behavioral strengths – reserve right to call a fascist pig a; …quantity and dis-inhibitionism;
FTD is costly https://consumer.healthday.com/senior-citizen-information-31/dementia-news-738/one-type-of-dementia-is-especially-costly-727215.html
Inflammatory pathways link to obsessive behaviors in a common form of dementia